accessible travel

  • Have JB, will travel: On the road this holiday weekend

    “Twenty bazillion travelers are expected to hit the roads this Thanksgiving weekend, according to the latest report from ZZZ…”

    Back in the day, (the “day” being my 20s), a big part of my job was writing/editing/distributing press releases that started just like this!

    While I no longer work for “ZZZ” (clever pseudonym, I know), I still feel a sense of nostalgia for pre-kid road trips. Back then, our biggest concern was giving the dog his anti-nausea meds before he got in the car.

    Today’s packing list looks a bit different:

    • IV pole for the feeding tube pump? Check.
    • Enough cans of formula for the entire length of the trip, plus extra? Check.
    • Medicines, syringes, bottled water and feeding bags? Check, check, check and check.
    • The actual kid? Check.

    I’m fortunate that most of our family live close by. When we do travel, though, there are several items that are CRUCIAL for making the trip with JB easier. Here are several indispensable products we swear by for traveling with our special needs toddler. Even if you don’t have a child with a feeding tube or wheelchair, I bet they’d be helpful for your little ones, too.

    • Skip Hop insulated bottle bags: I have an unspoken rule that if I see one of these bags on sale, I buy it. No matter what. I LOVE these mini coolers. While meant to keep bottles chilled (with the enclosed ice pack), we use them to store JB’s feeding pump and bag during the day. These bags have a great buckle handle, making it easy to attach to a stroller, car seat, high chair, etc.
    • Skip Hop stroller organizer (no longer available, but see similar model here) : Most strollers come with at least one cupholder for the grownups. Unfortunately, those cupholders are usually plastic and appropriately have giant “No hot beverages!” warnings. Enter this bag. It works with any stroller – including JB’s wheelchair stroller – and includes an insulated cupholder just screaming for me to finally put my latte safely down and free up my hand. Fact: I’m a much better mommy when I have my coffee with me.
    • Columbia diaper bag backpack: This backpack has been with us since we went to the hospital to have Baby JB. Since then, it’s withstood almost three years of JB, including daycare, playgroup, road trips, amusement parks, nature walks, playgrounds, the beach, and more. It’s fantastic: Super durable, tons of storage, and ultra comfortable. The only downside? Several of our friends have the same one because we all keep recommending it to one another!
    • Bright Starts Beaming Buggie: Behold, the little firefly that has made every overnight trip and hospital stay a whole light brighter. This toy seems simple: a cute little plastic bug that plays music and lights up. But it also has a waves/white noise option, which we use to help JB feel more at home wherever we are. It clips on to the pack-and-play or crib with ease, and is much easier to pack than a traditional white noise or music machine.
    • Wildkin nap mat: Consider this a “starter sleeping bag”. JB loves this all-in-one mat, blanket and pillow. It’s easy to roll up and bring when visiting family and friends, and it gives JB a familiar setting for his nap. Apparently it’s pretty comfy, too, considering we have photos of my dad napping next to it at a family function!
    • Blender Bottles: This one goes out to my fellow formula-feeding moms out there. These are the perfect way to mix a day’s worth of formula with minimal dishes to wash! Great for travel or everyday.
    • Car headrest hooks: Someone in a “tubie parent” Facebook group recommended these simple hooks. They are so simple, but so useful! We hang JB’s feeding tube pump bag (see: Skip Hop Bottle Bag above!) from these during car rides. You can also use them to hang car trash bags, headphones, purses, shopping bags, and probably 100 other things I can’t think of right now.

    So far, we’ve only traveled domestically by car on our trips with JB. Air travel and international travel are completely different ball games, from what I’ve read and seen. We’re not that brave yet, but I am hopeful that over the next few years travel will become more accessible to disabled travelers and their caregivers.

    What are your road trip must-haves? I’d love to hear!

    Note: This photo is of our dog, not JB. It obviously was taken while the car was safely parked. We would never allow our dog to stick his head out the window while the car was moving. We also would never leave our dog in a parked car unattended. 

    These opinions are all entirely my own, and I have not been compensated to review any of these products. That being said, there are Amazon affiliate links in the above post. As an Amazon Associate I earn from qualifying purchases.

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  • The seaweed is always greener

    We’ve been somewhat strategic about the children’s TV shows JB watches. Don’t get me wrong, I don’t have any problems with screen time; I just don’t want him knowing who Caillou or Peppa Pig is, out of fear that he’ll start wanting to watch them and I’ll have to listen to them. Better to stick with nostalgic favorites: Muppet Babies, Mister Rogers’s Neighborhood, and Sesame Street. (Some may call this selfish, but I call it self-preservation.) There’s one newer show, however, that JB can’t get enough of – Splash and Bubbles – and as a result, he’s completely, utterly fascinated with ocean life. Latching on to his love of all things underwater, our family recently took a day trip to Boston’s New England Aquarium.

    Before heading to the aquarium, we did a bit of research about what to expect. Is the aquarium handicapped accessible? Could we bring his stroller and feeding pump? Would there be quiet places to take a break if JB was getting overstimulated? The answer to all of these questions, luckily, was a resounding yes! I cannot emphasize enough how impressed I was by the New England Aquarium’s attention to detail regarding accessibility and inclusion.

    When we arrived, we were able to borrow a free sensory kit from KultureCity, filled with fidget toys, noise-cancelling headphones, some picture communication cards, and other helpful items. We didn’t end up using the kit, but knowing it was there if we needed it was a huge relief.

    Regarding wheelchair accessibility, I was pleasantly surprised by how much JB could see and experience from his seat. Many parks and museums have guardrails placed right at JB’s eye level, making it hard for him to see or interact with the attraction. The focal point of the New England aquarium, however, is a central tank extending four floors tall, with floor to ceiling viewing windows, and a ramp spiraling around it. As a result, you can see the animals (and occasional scuba divers) from almost any angle. Even better, JB was able to get very close to the glass, immersing him in the experience.

    In one of my favorite moments of the entire visit, a sea turtle swam right up to the glass, and JB started smiling and waving. JB then began making a “muh-muh-muh” sound and signing “more, more, more!” It was an interaction I’ll never forget.

    (I could make some type of joke about how this turtle helped JB come out of his shell, but I’m too mature for that kind of nonsense.)

    JB had another memorable animal encounter at the Edge of the Sea Touch Tank. An aquarium guide, seeing JB in his wheelchair unable to reach the tank, brought a hermit crab in a small container over to him, so JB would be able to see and touch the crab like the other visitors. It was probably just a small moment for the employee, but this inclusion meant the world to us, and to JB.

    Before we left the aquarium, we obviously had to visit the gift shop. (I’m a firm believer that it isn’t an actual museum/zoo/aquarium/theme park visit unless you visit the gift shop.)

    “We are not buying him another toy today, no matter what,” I vowed all morning, citing the mountains of toys already taking over our home.

    My husband and sister both smiled, knowing I would never actually uphold this promise. Sure enough, we ended our visit with a brand-new “wildlife rescue kit,” basically a doctor’s kit and a stuffed animal (JB chose a sea lion) inside a cute little pet carrier. I have to admit, though, it was a smart purchase – he plays with it almost every day. So look out, we may have a future veterinarian on our hands!

    Joyfully recommended…

    One way we’ve been encouraging JB’s “under the sea” interest is through picture books. Here are some of our family’s favorites:

    • An Anthology of Intriguing Animals: This book ticks off boxes for everyone in our home. Gorgeous book design inside and out (for me)? Check! Interesting animal facts (for my science teacher husband)? Check! Cool photos of animals both underwater and on land (for JB)? Check!
    • Manfish: If you had told me pre-parenthood that one day I’d list a biography of Jacques Cousteau as one of my favorite children’s books, I would have called you crazy. But this book is so breathtakingly beautiful, I would willingly hang up the pages as artwork around my home.
    • Three Little Words: Imagine the adorable, uplifting “just keep swimming” spirit of Finding Nemo and Finding Dory, combined with soothing watercolor illustrations of the beloved Pixar fish. Three Little Words will brighten your day no matter how bad the world may seem. 

    (There are Amazon affiliate links in the above post. As an Amazon Associate, I earn from qualifying purchases.)

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